Update on ICD-11
In 2022, the World Health Organization (WHO) formally transitioned to the International Classification of Diseases, 11th Revision (ICD-11) code set, from ICD-10. The code set is now available for WHO member countries to adopt for recording and reporting health-related conditions. Use of standardized nomenclatures, such as ICD in diagnosis reporting is essential to healthcare operations, billing and payment and public health surveillance.
Since the first half of 2023, the AOA has been actively engaging with the National Committee on Vital Health Statistics (NCVHS) within the U.S. Department of Health and Human Services (HHS) to follow the committee’s evaluation of ICD-11 and development of recommendations regarding adoption and implementation of the code set in the U.S.
Overview of ICD-11 structure
ICD-11 as a code set is fundamentally different in structure from the ICD-10-CM code set. The code set uses a foundation, or system of base codes that can be rolled up into different categories, and then a system of extension codes to create granularity. Through this system of stem and extension combinations, a coding framework that accounts for more specific diagnoses and conditions that account for over 90% of the ICD-10-CM code set can be developed.1,2 For example, ICD-11 contains a single stem code for an arm fracture which can be paired with extension codes to describe where the fracture occurred.
A recent analysis of the adequacy of ICD-11 for morbidity coding was conducted by researchers at the National Library of Medicine. Researchers performed one horizontal sample of the most commonly used ICD-10 codes and one vertical sample across the digestive diseases section of the ICD-10-CM. Key findings from this analysis were that:
- Overall, ICD-11 provides much more descriptive detail than ICD-10
- Over 90% of current ICD-10-CM codes can be mapped to ICD-11 following mapping processes referred to as “post coordination” and “linearization”
- Gaps in the code set are dispersed and not specific to any condition areas
Key considerations for somatic dysfunction
The ICD-11 code set generally provides sufficient granularity to map ICD-10 to ICD-11. Further, it may allow coding for somatic dysfunction with greater detail than is currently possible. Similar to the arm fracture example noted above, this would be achieved by using the somatic dysfunction base code with extension codes for surface topography.
However, there are more than 10 surface topography extension codes (compared to the 10 body regions specified in current ICD-10 somatic dysfunction codes). Thus, when being implemented in the U.S., policymakers must define what combinations of stem and extension codes are appropriate. AOA must be closely engaged in the post-coordination process.
Adoption of the ICD-11 code set in the U.S. and timeline uncertainty
The process of adopting and implementing ICD-11 is highly dependent on U.S. engagement with WHO. The WHO must support any post-coordination efforts countries wish to implement and must also grant states permission if they wish to engage in clinical modification.3 Additionally, unlike ICD-10, the ICD-11 code set is designed to be updated regularly, and WHO has established a process for doing so where stakeholders can request new codes or modifications. Ultimately, the post-coordination process in the U.S. will require working with WHO to define the appropriate extensions.
Based on historical precedent, there are several critical steps that typically must be taken in order for ICD-11 to be adopted and implemented in the U.S.:
- The National Committee on Vital Health Statistics must make a recommendation to the HHS Secretary regarding the adoption of ICD-11 and the agency that should be responsible for the process, including liaising with WHO.
- A liaison to WHO must be appointed.
- A mapping of ICD-11 to ICD-10-CM across the code set must be completed.
- WHO must approve any modifications if the code set is not implemented in its entirety.
- HHS must issue a notice of proposed rulemaking and seek public comment on adoption.
This multi-year process has not yet been initiated. Additionally, recent actions by the Trump administration, including a restructuring of the Department of Health and Human Services, as well as threats to withdraw from the World Health Organization, have created uncertainty regarding the timeline and process for a potential transition. The AOA is monitoring developments closely and will keep members updated as information becomes available.
References
- Fung KW, Xu J, McConnell-Lamptey S, Pickett D, Bodenreider O. A practical strategy to use the ICD-11 for morbidity coding in the United States without a clinical modification. J Am Med Inform Assoc. 2023 Sep 25;30(10):1614-1621. doi: 10.1093/jamia/ocad128. PMID: 37407272; PMCID: PMC10531107.
- Mabon, K., Steinum, O. & Chute, C.G. Postcoordination of codes in ICD-11. BMC Med Inform Decis Mak 21 (Suppl 6), 379 (2021). https://doi.org/10.1186/s12911-022-01876-9.
- https://cdn.who.int/media/docs/default-source/classification/icd/icd11/icd11-license.pdf?sfvrsn=45de958_7&download=true
ICD-10 changes for 2027
CMS has released the latest updates to the ICD-10-CM code set, effective for services provided from Oct. 1, 2026, through Sept. 30, 2027. This year’s update includes: 190 new codes, four revised codes and 30 deleted codes.
The full list of changes is available via the CMS ICD-10 webpage.
Notable new codes & revisions
- Expanded ectopic pregnancy coding with new codes identifying interstitial, cervical, cornual, and cesarean scar ectopic pregnancies, including whether an intrauterine pregnancy is also present.
- Thirty-three new codes for continuing pregnancy after vanishing twin syndrome, providing greater obstetric specificity.
- New pelvic disease code category (K6A-), including pelvic abscesses and other diseases of the pelvis not elsewhere classified.
- New odontogenic sinusitis codes identifying dental-related sinus infections by sinus location.
- Expanded plantar fasciitis and plantar fascial fibromatosis codes, including laterality and foot-specific reporting.
- New secondary malignant neoplasm codes for metastatic disease involving the larynx, pharynx and oral cavity.
- New toxic exposure codes for alkenes and cycloparaffins, with encounter type and intent specifications. Seventeen new codes specifically address cycloparaffin toxicity.
- Additional BMI codes providing greater specificity for underweight adult patients.
- New gender identity and transition-related codes, including gender identity disorder in remission and additional history/status reporting options.
- Greater diagnostic specificity across multiple chapters, continuing CMS’s trend toward more clinically detailed documentation requirements.